At
least that is what it feels like.
Okay,
so I knew I wouldn't actually be able to keep up with that DAILY log, but it
was fun trying. Once my school started back up again, there just weren't
enough hours in the day…
So
here we are, beginning week SIX, and it definitely feels like Day 2,571.
The
last few weeks have been ROUGH.
BUT
Madison has actually been a superstar. She has really stepped up and I'm
very impressed with how she is trying so hard to be a good student. She
loves her little work station (where she also gets to eat meals - which is a
random motivator I figured out a few weeks ago…) But she also has a
little village that is surrounding her now and we try to make sure there are
bright spots in each day.
Okay,
maybe she’s not a TOTAL superstar. We are still experiencing at
least 3 major meltdowns a day, objects being thrown, and doors being slammed,
but I am going to pretend none of that is happening right now. We
have to focus on the positive… At the end of last week, she finally
stopped crying each day and asking me "why did my stupid school shut
down?" This has truly crushed her spirit.
So
now that I have her schedule down, and I have a little team put together for
her, I think we both are feeling like things are a little bit more in control.
HOWEVER,
while she is doing a really good job of staying "in class",
participating, and asking for help when she needs it, the amount of learning
that is taking place is negligible. There isn't really a learning plan or
sequence in place yet; it is just kind of a hodge-podge of random
quasi-lessons. I'm beginning to worry that this aspect of it might
not be a "distance learning" problem, but actually a problem with
Madison's program even during normal times.
Her
current placement (COVID or not) is in an “LLH” classroom. LLH
stands for “Limited Learning Handicapped.” This is a step “below”
Learning Handicapped. Students in this program are not shooting for
a High School diploma, but for a “Certificate of Completion”, and have the
opportunity to attend a “transition” program until the age of
22. While I mostly feel like this is a good fit for Madison, I worry
all the time about the low expectations that these kids are held
to. They could probably do so much more, but because of the nature
of his program, they don’t really have to.
Curriculum? I
don’t think the administration really thinks that matters with this
crowd. I have been begging for curriculum since the first day of
school. Her sweet teacher actually brought some things by a couple
weeks ago. That was MUCH appreciated, but I'm not seeing how the
curriculum correlates with anything they are doing in class.
There
are several tech problems each day, and her class is still very confused by all
of the different platforms that are being used. Sometimes they start
class off on "Microsoft Teams", but then move over to "Schoology
Conferences", and depending on which computer she is on, which class she
is in, and which computer everybody else is on, sometimes she can see people,
sometimes she can't, sometimes they can see her, sometimes they can't.
Her school computer is terrible. Working on one of my little laptops
is the most efficient choice, but that is the laptop I “Zoom” on for my school
meetings, so sometimes I need it. I feel like we have devices coming out
our ears, but none of them do anything quite right.
Sometimes
Maddie is in each class for the full 80 minute period, (80 MINUTE!!!) sometimes
it's just a half an hour. Sometimes she goes in a breakout room with a
small group or her INCREDIBLE one-on-one aide, Nicole, who has been an ABSOLUTE
God-send throughout all of this. There isn't really any rhyme or reason
to her schedule, and that is hard, especially as I try to create her schedule
for each day. This week, I was finally able to nail down 2x/day
one-on-one time with Nicole, and I think that will help immensely.
So
back to that village I was talking about... We have some incredible
people on board, some of whom would like to remain anonymous. I recruited
this little team for several reasons. First and foremost, I want Madison
to have a bright spot and something to look forward to each day. While
every day can't be super-exciting, at least she has one of her favorite people
to look forward to almost every day. And, if you haven't noticed, the kid
is kind of social. ;-)
Our
wonderful neighbor Jamie works with Maddie every Monday. Maddie
walks to her house at 11 and eats lunch with her there. And then
they walk back here and finish the day together. This is imperative
to me because I teach my business class every Monday from
12:30-2:30. Madison has known Jamie since she was born, and we are
so grateful for this sweet gal who better become an “official” paraprofessional
someday soon!
Madison’s
sweet friend, Ciara, comes every Wednesday, which is Madison’s insane “minimum
day” and the day I teach my other Business class. While getting
interrupted by Maddie during the regular online meetings I have with the
families I work with, getting interrupted during the classes I teach is NOT an
option! Ciara usually goes on a walk with Madison, does her online
PE class with her, and helps her with 7th period. Ciara
has been SUCH a blessing.
And
then we have “Speech Therapist Jamie”. This is an incredible story
that’s too long for right here. The brief version: Jamie
was Madison’s speech therapist in preschool. They had an instant
connection way back then, even when Madison was non-verbal. We ended up hiring
Jamie for private speech therapy for several years, and I strongly feel that
Jamie had a huge hand in helping Madison go from “non-verbal” to “verbal”
around age 6. Eventually Jamie had to move away and we cried a
lot. We have kept in touch through all of these years, some years
more than others, but recently Jamie moved back to town! Now Jamie
is back in our living room, all of these years later, working with
Madison. She is also serving as Madison’s therapist, behaviorist,
yoga instructor, and acupressurist! Madison Facetimes Jamie almost
nightly so she can talk about and talk through all of her “behaviors” during
the day. It’s incredible.
And… then
there are the anonymous people who are helping. That’s changed
EVERYTHING.
So
where is big sister Savannah in all of this??? She is RIGHT
here next to us. However, her work and college schedule pretty much
exactly contradicts Madison’s school schedule, so she has become more of our
“wing-man”. If we are desperate, she is RIGHT THERE, but it is not
her job or responsibility to be right there, and I try to use her very
sparingly. She has her own life to lead right now!!!
All
that being said, Madison’s schedule is insane. This whole block
schedule/A-B Day thing is something I still can’t wrap my head
around. Here it is:
Madison’s Weekly Schedule
Monday
A Day
|
Tuesday
B Day
|
Wednesday
Minimum Day
|
Thursday
A Day
|
Friday
B Day
|
9:15-9:55
1st Period
Life Skills, Lyons
|
9:15-9:55
4th Period
Math, Lyons
|
9:00-9:25
1st Period
Life Skills, Lyons
|
9:15-9:55
1st Period
Life Skills, Lyons
|
9:15-9:55
4th Period
Math, Lyons
|
10:00-10:30
1:1 w/ Nicole
|
10:00-10:30
1:1 w/ Nicole
|
9:30-9:55
2nd Period
Reading, Lyons
|
10:00-10:30
OT and Nicole
|
10:00-10:30
1:1 w/ Nicole
|
10:30-11:45
Break
11:00-2:30 Neighbor Jamie comes to help
|
10:30-11:30
Break
11:30-12:00
Online Speech
|
10:00-10:25
3rd Period
Floral, Short
|
10:30-11:45
Break
|
10:30-11:45
Break
12:00 Every other Friday: go to Nana and Papas!
|
11:45-1:05
2nd Period
Reading, Lyons
|
11:45-1:05
6th Period
PE
|
10:30-10:55
4th Period
Math, Lyons
|
11:45-1:05
2nd Period
Reading, Lyons
|
11:45-1:05
6th Period
PE
|
12:30-1:05
1:1 w/ Nicole
|
1:10-2:00
7th Period Science, Lyons
|
10:55-11:55
Lunch
11:00-1:30 Ciara comes to help
|
12:30-1:05
1:1 w/ Nicole
|
1:10-2:30
7th Period Science, Lyons
|
1:10-2:30
3rd Period Floral, Short
2:30 Walk Jamie home (PE!)
|
2:00-2:30
1:1 w/ Nicole
|
12:00-12:25
6th Period
PE
|
1:10-2:30
3rd Period Floral, Short
|
2:00-2:30
1:1 w/ Nicole
|
3:00-4:00
Speech Therapist Jamie
|
|
12:30-12:55
7th Period
Science, Lyons
|
|
5:00 Gymnastics!
(every other Friday in Manteca)
|
So… Where
do we go from here? I don’t even know. Try to
remain positive? That’s tough, but I’ll do that for
Madison. I try VERY hard to keep my opinions on all of this private,
but Madison is very smart and intuitive and it’s hard to hide things from
her. Right now it is a one-day-at-a-time
situation. That’s all we can do. In a way, I am mourning
our “old-life”. I loved that life. I had everything
figured out in that life. But I’m coming to the grim realization
that we are in this “other life” for the long-haul, so I am just going to have
to find a way to make this work.
And
then I slap myself, and realize… this is all in God’s
hands. He knows what is happening and why it is
happening. When I wake up crying, I turn to Him and reset myself
knowing that I can trust Him. Someday we will see and understand why
this is all happening. I take great comfort in that.
Trying to be such a good student.
Every other Friday afternoon at Nana and Papa's.
PE with Sissy
Lunch at Neighbor Jamie's on Mondays!
Working hard with Jamie :-)
Maddie is just kind of happy when SLP Jamie comes over on Mondays!
Action shot! PE with Ciara :-)
Ciara can kind of get Maddie to do anything.
So excited that Ciara left her purple pencil behind!
Not sure how they are open, but Funtastic Gymnastics is doing a Special Needs Open Gym every other Friday.
So happy Ciara could join us for school pics. AND she did a fantastic job curling Maddie's hair!